Thursday, June 28, 2012

No more dialysis!

Today I got the good news that I could take my dialysis cath out! HurrAy! My new kidney is functioning so well. It's a super kidney and is an over achiever. Its pumping out pee like you wouldn't believe. Just amazing. Today I went over all the meds I have to take everyday. There are a ton! I'm scared that I'm going to catch some deadly viruse now that I don't have an immune system. And I feel bad asking are you sick? All the time. I guess it's the trade of. I also got to start eating today! Yum. I drank a whole huge jug of water! And didnt feel like crap afterwards. I also ate a sandwich and didn't swell up! Awesome! Today was a great day. Me and Lisa took a lot of walks around the floor. It's nice having a friend here. Well until tomorrow.

Wednesday, June 27, 2012

Progress

Today I have made a lot of progress.mi have gotten up to walk about four times today. I also have been able to further distances hurray. They changed my pain meds to morphine because I was having major side effects from the other meds. Started my immunosuppressant drugs and so far no reaction. Yes! Lisa my donor looks great and had made a lot of progress today also. We has a race with our IV poles tonight. This is seriously heavan! I feel so great!

I love my life

Today is amazing. There is for once a happy feeling being in the hospital. I feel amazing and I have since I woke up from surgery. This has truly been a miraculuous experience to go through. I have been blessed and have been given the chance at life and to learn many thing. I am truly grateful for my donor. And a second chance at life.

Monday, June 25, 2012

Tomorrow is the beginning of the rest of my life

Tomorrow is the beginning of the rest of my life. Tomorrow I will be given one of the greatest gift a person can give. My life. I am sittiNg here shaking with fear but I am somewhat calm and have faith that things will be fine. Today I have felt so much love from so many. I am truly blessed with the people I have in my life. Thank you all for your never ending support and love.

Thursday, June 21, 2012

Families are forever

We are getting down to the wire with the whole transplant. Its coming up on Tuesday and I can't even believe that its here. Finally.  I have never felt to grateful for something in my entire life. I have never seen such pure charity than I have from my donor. The gift she is giving is amazing. My life. She is amazing.

Yesterday was the last transplant appointment I will have before surgery. It took over 4 hours! We met with surgeons, PA's, pharmacist, and my coordinator. More blood tests and a whole lot of paper work to sign.  I am terrified to get another surgery but I am excited like a kid on Christmas morning.

I did also get diagnosed with a blood disorder called anti-phospholipid syndrome. Great right. There is a big possibility that cause my kidney to clot off in the first place. Imagine that. Once again if thats the case I am completely a walking miracle. I was before but even more so now.  APS is an auto immune disease. Don't worry you can't  catch it. :) It cause blood clots, strokes, fatigue, migraines and headaches, memory loss, miscarriage, pre-eclamsia, pre term births, muscle aches and pains, dizziness, and a whole lot more. Those are all the symptoms i have. And suddenly a lot makes sense in my life.  I have struggled with these things since high school. I thought everyone felt like that or that I was lazy or something. Nope it was APS. I am just so grateful that I have been able to have two beautiful children. and have been lucky enough to not have a stroke yet and find this out and start treating it before I do.  Another miracle in my life. I have had so many.

This experience I have been going through is truly amazing. Ya I feel like crap most of the time. But I am here on this earth. I have amazing family and friends. The things I have been going through are terrible; but it has shown me so much. I have hope and my faith has never been stronger. I have faith in people. I have seen and met so many amazing people. We have been able to strengthen eachother and I have been able to grow so much as a person.  I don't take things for granted. I am able to slow down and smell the roses. I cherish every single minute of every single day.  In a way our trials are blessings to help us grow and learn things about ourselves we thought were possible.  I ofter get asked. How do you do it? You are my hero. I'm no hero you just do what you have to do to survive.

Today is a special day. Another great example of great people.  Alexanders Print Advantage is hosting a golf tournament and all proceeds go to my medical fund.  Its absolutely amazing the things that have happend in my life. 54 holes craziness! I am truly grateful for them.

Well until the surgery.....